Nikki McIntosh

Nikki McIntosh is the founder of Rare Mamas®, a resource and community dedicated to empowering mothers of children with rare diseases, and host of the "Rare Mamas Rising" podcast. Her mission stems from the profound need she felt after her son was diagnosed with a rare disease, fueling her with a passion and purpose to offer a lifeline of hope and connection to other rare moms. Nikki is a sought-after speaker and a trusted voice in the rare disease space. From national conferences and patient advocacy group gatherings to biotech industry meetings and media interviews, Nikki passionately advocates for the rare disease community. She lives in Southern California with her husband, Tony, and their sons, Mason and Miles.